My guest today, Sandra Butcher, the Chief Executive of the National Organization for FASD (U.K.) said it best: Every victory for FASD in any part of the world is a victory for all of us. After a growing movement from many organizations and individuals in the U.K., decades in the making, FASD recognition has been pushed to the forefront.
Before joining National FASD Sandy had nearly 30 years of experience working at the intersection of science and public policy, including as International Executive Director of the Pugwash Conferences on Science and World Affairs. Originally from New Jersey, USA, she’s married to a Brit and mum to two awesome young people. She has lived in the UK since 2006. Her youngest son was diagnosed with FASD when he was nearly 10. She’s a big believer that children grow toward the sunshine and is convinced that hope has to be at the root of how we approach FASD as a society and as families.
I really believe as we are looking toward the future, all of us in this community, and all those people that support us, we have to believe that things can change for the better. Because otherwise what message are we sending to the people we are trying to support.
I wanted to invite Sandy on to talk about the recent NICE Quality Standard, and the next thing I know they are hosting a live streaming report announcing "The Time is Now" report! We are now fast-tracking this episode so you can find out all the great stuff that is going on over there and how they achieved it. We talk about:
People with FASD grow up thinking they are alone. They don’t understand there are other people like them out there. My son, who is almost 18, doesn’t go to sleep every night without hearing, I love you. And it’s going to be ok. And you are going to get through this. And there are adults with FASD out there who say it gets easier.
Not sure about you, but I was exhausted hearing all that was going on. And that isn’t all, in between all that, we squeeze in discussions around the pub culture, media portrayal and stigma, cost of FASD, and educating professionals.
As Sandy says, there are people of goodwill all over the place who realize how important it is that we haven’t yet as Society fully addressed what is going on. But they just need to know how to connect with each other.
Big shout out to everyone in the UK (past and present) that has been a part of this process to get the UK to where it is today. For more information on the items we discussed, be sure to check out the Show Notes below.
NICE Quality Standard: National Institute for Health and Care Excellence Policy Matters
Interactive website: Me and My FASD
Prevention website: Prevent FASD
Sandra’s personal Blog: FASD: Learning with Hope
Check out our Facebook Page: FASD Caregiver Success
Join our Facebook Group: FASD Caregiver Success Group
Follow me on Twitter: @JeffjNoble