I met Matthew at one of the very first conferences I spoke at. His story is definitely one of reinvention. He is a trained dancer, speaker and recently, after working in an office environment for many years, went back to College, to study both cooking and landscaping.
We start the podcast talking about how he is dealing with the new reality of COVID 19.
I am still surviving. It’s having to make my own plans. It’s having to make my own structure, my own consistency, day to day, week to week and it’s hard.
But he is doing it. At 40 years of age he has a lot of practice and insight and he knows his strengths and limitations. In fact we talk about that and other important areas of not only struggle, but overcoming obstacles and growth:
I am stoked to talk to Colette Philcox today – not only an individual on the spectrum, but the daughter of Brian Philcox and Bonnie Buxton – and the inspiration for Bonnie’s book: Damaged Angels. Colette is a mother of two – one on the spectrum, is an advocate and holds down a job in the film industry.
Colette's story will inspire hope in individuals and caregivers. Adopted at 4, she was on the streets and addicted to crack by her mid-teens. When I asked her what was the factor that changed the trajectory of her life, she said there wasn't any one thing that happened.
It just clicked. Like a puzzle piece that finally found it's place.
Now with experience and maturity at 40, you will be captivated by her candor, honesty and insights on:
With his wife Bonnie Buxton, he co-founded FASworld, a charity dedicated to raising awareness for FASD and supporting caregivers. Bonnie is author of Damaged Angels, one of the most influential books to this day on Fetal Alcohol. In addition to being parents of two daughters, including one on the Spectrum, distinguished careers and work in the FASD field, they developed the idea of the first FASday, and with assistance from Teresa Kellerman in the United States, introduced it to the world in 1999.
In this episode Brian shares:
I am excited to bring this podcast episode to you as Lisa has been a champion of mine ever since I first met her while speaking in Saskatchewan. Not only does Lisa share her professional experience as a (now retired) Occupational Therapist, a member of the Board of Directors of Canada FASD Research Network, but she has also raised two individuals on the Spectrum and is currently raising a grandchild.
Her experience raising her two children – with nine years apart – is an example of how far our understanding of FASD has come. From the comment “my he is a busy boy” and no diagnosis until age 15 for her son, so no services and supports, to a diagnosis in grade 2 for her daughter and the resulting supports and accommodations for her. She also discusses her own growth as a parent and inter-dependence for success for individuals on the Spectrum.
We also discuss:
Susan has a BA in Business Management and an AS in Criminal Justice and Corrections. A former foster parent, she and her husband Duane are parents to 13 children, including 5 with FASD, 1 with Celiac Disease and 3 with Reactive Attachment Disorder. In addition, she mentors foster and adoptive parents, advocates, presents and serves on several Boards and Committees at the local and State level.
I should have been a foster kid but wasn't. I'm a survivor. I was drawn to kids that didn't have a voice. I had done the hard work of letting go of those resentments and growing up emotionally.
It is because of this background, Susan was led her to foster and adopt. In this podcast she reveals how, as a caregiver for individuals on the Spectrum, like so many others, she found herself in a State with no service providers, and what professionals there were had extremely limited expertise in Prenatal Alcohol Exposure. In addition there was a definite lack of systems support for...
As a treatment-level foster parent in Ohio for 3 years, Aubrey noticed many of her kids had similar symptoms that were not trauma based. After one of her children was diagnosed with Fetal Alcohol Spectrum Disorder, her eyes were opened to the prevalence of this disability.
After a disappointing conversation with a local hospital about FASD supports and services, she realized she would need to follow her mom's mantra: If it's meant to be, it's up to me.
This led her on a path to discover everything she could about Prenatal Alcohol Exposure through reading, research, seminars and talking to leading experts in the field. She now advocates, trains and mentors others, as well as consulting with governments in her State to get more resources for FASD.
She has done all this while balancing military careers for both her husband and herself. She discusses similarities and differences between life in the military with raising children with FASD and why she considered...
Dr. Mansfield Mela is an Associate Professor of Psychiatry at the University of Saskatchewan. His clinical practice is out of the Forensic Outpatient Clinic at University of Saskatchewan and the Forensic Inpatients Services at Regional Psychiatric Center, Saskatoon.
His interest in FASD began with a desire to better understand and assist his clients, who he felt at the time were not co-operating with completing homework assignments. After discussing his frustration with a colleague he realized it was the manifestation of symptoms of Fetal Alcohol - which led him on a path of greater understanding.
Dr. Mela drops mega information bombs in this podcast about FASD and aggression that will leave you informed and ready to diffuse frustration and aggression in your household.
He also provides excellent insights on the current pandemic, and what it means for caregivers and individuals with FASD. He reminds us despite the uncertainty:
This is our opportunity to load up on
Michael Harris is an active speaker regionally and nationally, a foster parent to a young man on the Spectrum and creator of the FASD Elephant™ podcast and website. Michael graduated from Vanderbilt University with a BA in Psychology and received an MA in Child Psychology from the University of Minnesota’s Institute of Child Development.
You will learn:
The six types of...
After her daughter received her FASD diagnosis, she began to learn as much as she could in order to help her daughter navigate life. It was after she met and spoke with adults with FASD that she founded Team LOVE to support her daughter, which has evolved to become her passion project connecting families raising children with Fetal Alcohol.
With the recent events and closures of schools, many parents and caregivers are expected to step up to teach their children at home. This is creating a lot of anxiety in not only parents, but children.
The buzzword “homeschooling” is being used across social media. Parents are creating and sharing schedules thinking this is what...
R.J. Formanek is an FASD speaker, educator, creator of Flying With Broken Wings - a Facebook Support Group for Individuals with FASD, caregivers and professionals who support them, as well as the inspiration behind and partner in the Red Shoes Rock international awareness alliance. Oh and did I mention, he is on the Spectrum?
R.J.’s story is an adventure of hope and inspiration from how he began his journey to end up where he is now - the happiest he has ever been.
Not that I was my own worst enemy – But I definitely wasn’t my best friend.
Despite a rough start, growing up in the "system," he lived a "normal" life on the outside - becoming a father, a husband, and holding down jobs. Still, it was a struggle, living with an "alphabet soup" of diagnoses, which never really fit. Until a close friend suggested maybe what he had was Fetal Alcohol.
She looked me square in the eye and said: It's not your fault. And that just broke me right there.