This is definitely a topic of great interest for caregivers. Lately, there have been requests for more information on how to help siblings navigate, respond, and manage their relationship with a brother or sister who has Fetal Alcohol Spectrum Disorder. You asked … I delivered! But before we get going, maybe hit pause and gather your kids so they can listen and learn from someone who has been there!
Amy Patterson has a younger brother with FASD. It was this relationship that ignited her passion to work with children who present with externalizing behaviour. She grew up immersed in the everyday stress that her brother faced due to developmental, social, emotional, and cognitive deficits, and the resulting impact it had on the entire family. Even at a young age, she felt like the world around him could and should do a lot better in setting him up for success. Accordingly, this reality led to her obtaining a Bachelor of Applied Child Studies degree and...
What picture comes to mind when you think of a birth mom of a child with prenatal alcohol exposure? The fact is whatever you thought, there is no one version. There are thousands of stories of birth moms. But the one thing I do know is any birth mom I have ever met has never wanted to intentionally hurt their child, and today’s guest is no exception.
Niki Marshall had a troubled youth. As a result, she was addicted to drugs and alcohol at 13, kicked out of school at 14, and living on her own at 15. All the time seeking to self-medicate an undiagnosed mental health disorder. Eventually settling into a relationship, being told she nor her partner could have children, she found out on a visit to a doctor she was 4 months pregnant. We talk about what that was like for her when she found out and what she did immediately, as well as:
Sometimes I go on Twitter – not much – but what I do notice is there are a lot of people who talk about how the system needs to change but then they don’t do anything about it. My guest on today’s podcast – Sara Messelt, the Executive Director of PROOF Alliance - saw a need, gathered resources, and together they did something about it. I hope you will be as inspired as I am by the end of this episode to invite or join others and go make a change in your community.
Sara’s origin story is a little different. She started her passion for FASD through a desire to ensure healthy families by volunteering for March of Dimes while in high school in a Youth Peer Education Network! She graduated with a degree in Family Social Science from the University of Minnesota then worked with the March of Dimes for 18 years. She has spent the last 20 years with the former Minnesota Organization for Fetal Alcohol Syndrome (MOFAS) – now known...
I know I say every episode is my favourite and they are – but this one is another home run in terms of a professional that truly not only gets FASD but she hits it out of the ballpark.
Dr. Pei’s information is science-backed and tested in clinical settings. She has also created an awesome document as a roadmap for success for individuals on the Spectrum.
In fact, the analogy of cars and roads, and the journey is exactly how she describes her document. But before we get there, we cover a lot of ground (did you see what I did there?), including:
Annette Kunzman co-founded FASD Network of Southern California in 2010 and was integral in establishing it as a non-profit organization in 2014. She has served as Secretary and Treasurer and currently as President. Annette holds a Master’s in Management degree from Northwestern University and received her undergraduate degree at the University of Nebraska. She was certified as a Chartered Financial Analyst in 1988.
Following a long career in commercial lending and investment management, Annette retired in 2006 to focus full-time on raising her young sons with Fetal Alcohol. In 2019, Annette was named to the California Department of Education’s Student Mental Health Policy Workgroup by State Superintendent Tony Thurmond.
We know caregivers spend years knowing their child is struggling, but not getting the support or appropriate diagnosis they need. Annette is no different. She poignantly shares her story of her...
I’ve interviewed and learned from a lot of people over the years, but this latest podcast guest has an interesting perspective and an engaging way. This is one of my 10 timer episodes – you will want to listen at least 10 times to unpack everything Sheila Burns has to say.
I first saw Sheila present at a Conference in Northern Ontario. She tells me her background in children’s mental health, women’s health, and community development has informed the emerging vision for FASD prevention and improved intervention in her province of Ontario (Canada). To build capacity, she developed tools to guide and reinforce best practices. One of these tools is the My Kind of Mind booklet which we delve into later.
Sheila has held leadership roles to address individual and systemic issues related to FASD in Ontario since 1998 including FASD Ontario Network of Expertise – Network Chair and Leads on the Diagnostic and Justice Action...
It’s much easier for those that should know, to blame the parents, then it is to look at the failed system and their lack of education.
In today’s podcast we meet author, advocate, mom, wife, and adoptee Rebecca Tillou, who is also an individual on the Spectrum.
Adopted at birth, Rebecca grew up with a loving family, graduated with a Bachelor’s Degree in Communicative Sciences and Disorders (Speech Pathology) and now works as a Claims Adjuster - a job she loves and excels in. She knew she was adopted, but it wasn’t until she was married and had her second child she started to wonder about her origin story.
Rebecca detailed her search for her birth mother in her book Tenacity, which we discuss, along with:
Accepting help is...
I read a fantastic article by a caregiver of an individual on the Spectrum and thought … mmm, who wrote this? I discovered it was none other than Paula Schuck, freelancer, social media guru, and blogger – but also a parent in our private FASD Success Caregiver Group. I immediately knew I had to bring her on the podcast to share her fantastic tips on parenting a teen with FASD.
Success looks different for our guys. For our families. Every single day.
Paula shares her journey – parenting two girls - one with FASD and one without and how she knew the younger one, who was always on the go, super sensory sensitive and hard to transition, just wasn’t like her sister. We also touch on:
The timing of this podcast with Dr. Jeffrey Wozniak could not have been better. Little did I know a media story would appear two days before this podcast release, about the four year follow up study he and his team completed on choline for children with Fetal Alcohol. And boy did our Facebook Group explode with posts and parents wanting to purchase or order.
See that’s the thing with headlines, and announcements of new therapy and treatments – they are meant to grab your attention and emotion. My job is to save you some time, money, and further heartache by going directly to the source and getting the relevant information without the emotion. Choline does have benefits, but you need to know what those are and what target population it works best for.
So, who is Dr. Wozniak?
He received his Ph.D. in Clinical Psychology at Kent State University in 1997, and a post-doctoral fellowship in Pediatric Neuropsychology at the University of Minnesota in 1999....