Are you like our guest today – riding the bus of denial? Knowing your loved one has FASD but then doubting the diagnosis or thinking it is something else when they “seem” to be functioning as a neurotypical.
It can be an exhausting journey. But if you want to learn how to get off that bus, and find success, join Patti Crouch and me for the next hour.
Patti is the adoptive mother of three children. She has no clue what to write in her bio because all she is trying to do is survive, do what is best for her children and not gain weight by all the chocolate and ice cream that she eats. She does host the "The Denial Bus" podcast when she can, where she simply shares real and raw talk and interviews from parents and professionals that have a touch with adoption, trauma, and different needs kids. Occasionally she is funny.
If I’m going to be vulnerable,...
Dialectical Behaviour Therapy (DBT).
Substance use treatment programs.
How do these three subjects relate and what helps?
You will find out in today’s episode that will give you hope, inspiration and acknowledgement as a caregiver or individual with FASD. Your voices are heard. Your opinions and experiences do matter. Research is underway to find answers to create better supports, interventions and change outcomes.
Dr. Aamena Kapasi is a postdoctoral fellow at the University of Alberta and is working on the Substance Use and Addictions in FASD Populations study for her postdoctoral research in partnership with CanFASD. Aamena completed her M.A in Counselling Psychology at the University of Western Ontario, and her Ph.D. in School and Clinical Child Psychology at the University of Alberta. Aamena has been researching FASD since 2013, focused on supports and...
I’ve followed today’s guest on Twitter for a long time so was honoured when she agreed to come on the podcast and talk about what she is up to in Rochester – and it is a lot and extends beyond NY! If you want to know about tools to help you on your parenting journey you are going to want to tune in today!
Christie Petrenko, Ph.D. is a clinical psychologist and researcher who has been conducting research with individuals with FASD since 2003. She completed her graduate training in San Diego in 2009 and is currently a faculty member at Mt. Hope Family Center, University of Rochester. Her research focuses on developing and evaluating interventions for people with FASD, including the use of mobile health technology to increase access to care. Dr. Petrenko also runs a multidisciplinary FASD clinic providing diagnostic, intervention, and family support services.
In trying to teach people about FASD and improve awareness,...
My good friend Aliy Brown from FASD Hub Scotland reached out to let me know about some interesting research going on right now in Scotland with young people with FASD. In addition, the researcher is an Educational Psychologist so I get all the details on school assessments, interventions and how to work as a team to implement accommodations in the school setting.
Miranda Eodanable is anEducational Psychologist in Scotland with responsibility for neurodevelopmental assessment pathways with health services in areas of FASD and Intellectual Disabilities. Miranda has worked in education systems for the last 20 years and has guest lectured on the Scottish Masters in Educational Psychology courses. Currently, she is working on a Ph.D. at the University of Edinburgh on the value and impact of an FASD diagnosis.
Lots of research talks about professional views about diagnosis and I was like, where is...
How do I keep my child/teen/adult safe online is a frequent question I get from caregivers.
In fact, just a couple of days ago in our private Facebook Caregiver group, someone asked that very question. Caregivers responded with everything from, we never allow access, lock it up, only supervised use, to parental controls. I get it. We want to keep our kids safe. And for some this may still be the answer … but today’s guest is going to challenge your thinking a little. She sure did mine. She says the most important parental control is you … but it might not be in the way you think.
Jess McBeath is an online safety specialist in Scotland, who believes everyone should be empowered to live a good life online. She has trained thousands of people, including teachers, social workers, foster carers, and police across the UK, to keep children, vulnerable adults and themselves safe online.
Online safety is so fascinating...
We know our active audience has a higher percentage of moms over dads … but we know the dads are out there. Whether they are in the main caregiving role or behind the scenes with their partner, dads or male influences are an important part of the caregiving journey for many families. That’s why I’m super stoked to have my next guest Bill Michaud talk about his FASD journey. And it just so happens to be Father's Day on the day we release this episode.
Bill is a husband (to previous podcast guest Debbie Michaud), a foster and adoptive dad, works in the developmental services sector, and as he reveals on the show today, suspects he is also on the Spectrum. This guy gets it.
We don't take on what's going on internally for (our kids) and apply it to what's going on externally, because we don't know and they don't have the ability to tell us. So, everyone is going around...
Today’s guest is a little bit different from the others. Her specialty is an area caregivers ask a lot of questions about (eating, food and therapy). Unfortunately, there isn’t a lot of specific FASD knowledge about treatment. When we discovered Dr. Federici through a webinar on eating disorders and saw the intersection between FASD and Eating Disorders was so great, we knew we had to get her on the show.
Dr. Federici is a Clinical Psychologist and the Owner of The Centre for Psychology and Emotion Regulation. She holds an Adjunct Faculty position at York University and is a distinguished Fellow of the Academy for Eating Disorders.
You have to be able to combine what you know to be true about working with people who have FASD and what you know to be true about eating disorders and emotion regulation – and that’s what I love to do in my career. Adapting and fine-tuning treatment for people who are often missed.
We know FASD is a...
Anyone that has followed me for a while knows about Amanda Burley – Amanda and her family were the first family I coached after graduating from the FASD Program at the Toronto CAS Child Welfare Institute.
Tara and I have the privilege and the honour to have remained friends with her and her family. I love sharing updates for caregivers so they can follow her journey.
I am here for a reason. It’s to help kids with FASD who can’t speak like I speak.
Amanda candidly shares some of her struggles, achievements, philosophy and letting us know what is new, including:
Do you know what uncinate fasciculus means? I didn't. Do you ever start reading a recently published research paper and you find it written in such a way you don't understand what it is about but you want to? Me too! That is why I am so pumped to have this returning guest to the FASD Success Show, Dr. Catherine Lebel.
Catherine Lebel, PhD is a Principal Investigator, and Associate Professor in Department of Radiology at the University of Calgary.
Today, we dig deep into science by not only dissecting a recent research paper Dr. Lebel and her Lab published but also reviewing a study on mental health and individuals with FASD. But don't worry, I help make it all accessible. In fact, I read line by line the abstract of the research paper and Dr. Lebel translates it so you and I can understand it. We talk about how this recent research differs from previous, as well as:
The episode this week is a chat with three cool and awesome advocates who are doing great things for caregivers and individuals with FASD. It may be in my home province of Ontario, but what they have to say and are doing can inspire and help where you are.
Today I’m talking to Sharron Richards, Mary Hutchings and Mary Ann Bunkowsky about social work, advocating for system change, building support teams and The Parents Helping Parents Project, a phone support resource provided by parent Mentors for parents and caregivers of individuals with FASD in Ontario.
Sharron Richards received her Master of Social Work degree from Carleton University and worked in child welfare for close to 40 years, primarily as a community development worker. She chairs the Toronto FASD Network and is committed to bringing her knowledge, experience, resources, and social privilege to ensuring that individuals and families affected by FASD have access to the resources and supports...