Sharing stories and journeys from caregivers is one of my favourite things to do. It provides insight and inspiration for others from people just like you who know what you are going through.
Today I chat with my good friend, and Caregiver Kickstart Coaching program alumni, Christine and her daughter Angelina. Not only has their relationship improved in the last year, since getting real about FASD, and working through their grief and loss, they have emerged the other side and are kicking some advocacy ass right now in their home state of Kansas.
Christine Bofenkamp is a freelance graphic designer and writer. She and her husband are raising Angelina who was adopted through kinship care, or how Christine likes to say, "our family tree has a limb that curls right back in.” When not working or supporting her daughter with online studies, Christine is pushing to get her new home state of Kansas FASD informed. She is building a...
Have you seen the memes pairing motherhood and alcohol? With phrases such as,
Since FAS was first named in 1973 there have been ongoing efforts directed at prevention. While turning to alcohol to celebrate or as a coping mechanism is not new, over the last 10 years a new segment of the population has emerged on social media: wine moms.
If you search the hashtag #winemom, or variations of it, on Instagram you will get over 84,000 hits. Should this be a concern?
Our two guests today – Dr. Kelly Harding and Lisa Whittingham – wanted to take a closer look and are here today to talk about what they discovered.
Dr. Kelly Harding received her Ph.D. in Interdisciplinary Rural and Northern Health from Laurentian University in...
Are you like our guest today – riding the bus of denial? Knowing your loved one has FASD but then doubting the diagnosis or thinking it is something else when they “seem” to be functioning as a neurotypical.
It can be an exhausting journey. But if you want to learn how to get off that bus, and find success, join Patti Crouch and me for the next hour.
Patti is the adoptive mother of three children. She has no clue what to write in her bio because all she is trying to do is survive, do what is best for her children and not gain weight by all the chocolate and ice cream that she eats. She does host the "The Denial Bus" podcast when she can, where she simply shares real and raw talk and interviews from parents and professionals that have a touch with adoption, trauma, and different needs kids. Occasionally she is funny.
If I’m going to be vulnerable,...
Dialectical Behaviour Therapy (DBT).
Substance use treatment programs.
How do these three subjects relate and what helps?
You will find out in today’s episode that will give you hope, inspiration and acknowledgement as a caregiver or individual with FASD. Your voices are heard. Your opinions and experiences do matter. Research is underway to find answers to create better supports, interventions and change outcomes.
Dr. Aamena Kapasi is a postdoctoral fellow at the University of Alberta and is working on the Substance Use and Addictions in FASD Populations study for her postdoctoral research in partnership with CanFASD. Aamena completed her M.A in Counselling Psychology at the University of Western Ontario, and her Ph.D. in School and Clinical Child Psychology at the University of Alberta. Aamena has been researching FASD since 2013, focused on supports and...
I’ve followed today’s guest on Twitter for a long time so was honoured when she agreed to come on the podcast and talk about what she is up to in Rochester – and it is a lot and extends beyond NY! If you want to know about tools to help you on your parenting journey you are going to want to tune in today!
Christie Petrenko, Ph.D. is a clinical psychologist and researcher who has been conducting research with individuals with FASD since 2003. She completed her graduate training in San Diego in 2009 and is currently a faculty member at Mt. Hope Family Center, University of Rochester. Her research focuses on developing and evaluating interventions for people with FASD, including the use of mobile health technology to increase access to care. Dr. Petrenko also runs a multidisciplinary FASD clinic providing diagnostic, intervention, and family support services.
In trying to teach people about FASD and improve awareness,...
My good friend Aliy Brown from FASD Hub Scotland reached out to let me know about some interesting research going on right now in Scotland with young people with FASD. In addition, the researcher is an Educational Psychologist so I get all the details on school assessments, interventions and how to work as a team to implement accommodations in the school setting.
Miranda Eodanable is anEducational Psychologist in Scotland with responsibility for neurodevelopmental assessment pathways with health services in areas of FASD and Intellectual Disabilities. Miranda has worked in education systems for the last 20 years and has guest lectured on the Scottish Masters in Educational Psychology courses. Currently, she is working on a Ph.D. at the University of Edinburgh on the value and impact of an FASD diagnosis.
Lots of research talks about professional views about diagnosis and I was like, where is...
How do I keep my child/teen/adult safe online is a frequent question I get from caregivers.
In fact, just a couple of days ago in our private Facebook Caregiver group, someone asked that very question. Caregivers responded with everything from, we never allow access, lock it up, only supervised use, to parental controls. I get it. We want to keep our kids safe. And for some this may still be the answer … but today’s guest is going to challenge your thinking a little. She sure did mine. She says the most important parental control is you … but it might not be in the way you think.
Jess McBeath is an online safety specialist in Scotland, who believes everyone should be empowered to live a good life online. She has trained thousands of people, including teachers, social workers, foster carers, and police across the UK, to keep children, vulnerable adults and themselves safe online.
Online safety is so fascinating...
We know our active audience has a higher percentage of moms over dads … but we know the dads are out there. Whether they are in the main caregiving role or behind the scenes with their partner, dads or male influences are an important part of the caregiving journey for many families. That’s why I’m super stoked to have my next guest Bill Michaud talk about his FASD journey. And it just so happens to be Father's Day on the day we release this episode.
Bill is a husband (to previous podcast guest Debbie Michaud), a foster and adoptive dad, works in the developmental services sector, and as he reveals on the show today, suspects he is also on the Spectrum. This guy gets it.
We don't take on what's going on internally for (our kids) and apply it to what's going on externally, because we don't know and they don't have the ability to tell us. So, everyone is going around...
Today’s guest is a little bit different from the others. Her specialty is an area caregivers ask a lot of questions about (eating, food and therapy). Unfortunately, there isn’t a lot of specific FASD knowledge about treatment. When we discovered Dr. Federici through a webinar on eating disorders and saw the intersection between FASD and Eating Disorders was so great, we knew we had to get her on the show.
Dr. Federici is a Clinical Psychologist and the Owner of The Centre for Psychology and Emotion Regulation. She holds an Adjunct Faculty position at York University and is a distinguished Fellow of the Academy for Eating Disorders.
You have to be able to combine what you know to be true about working with people who have FASD and what you know to be true about eating disorders and emotion regulation – and that’s what I love to do in my career. Adapting and fine-tuning treatment for people who are often missed.
We know FASD is a...
Anyone that has followed me for a while knows about Amanda Burley – Amanda and her family were the first family I coached after graduating from the FASD Program at the Toronto CAS Child Welfare Institute.
Tara and I have the privilege and the honour to have remained friends with her and her family. I love sharing updates for caregivers so they can follow her journey.
I am here for a reason. It’s to help kids with FASD who can’t speak like I speak.
Amanda candidly shares some of her struggles, achievements, philosophy and letting us know what is new, including: