Today’s episode is a heavy topic that might make some people uncomfortable, but it is one that we should be prepared for – because it is inevitable at some point our children will be faced with death – whether that is a pet, family member or friend.
We reached out to Marjorie Wingrove who is a death doula, in Eastern Ontario. Her focus is on death education, bereavement support and end-of-life preparation. In 2021 she created the Death Happens podcast with support from Trent Radio. Marjorie is a single parent of two adolescents, one with prenatal alcohol exposure.
She has served as a parent advisor on several committees and workshopped coping strategies with other parents of kids with FASD.
There is nothing easy about the topic of death. Instead, invite curiosity. We do not get over grief. If there is love, there is going to be grief. There is no method necessarily except to pay attention to what is going on with the person who is bereaved and to listen...
Have you ever wished you could understand how your loved one experiences the world? What do they think about their disability and what do they want others to understand? Today’s guest is going to help us do that. Last year, Miranda Eodanable was on The FASD Success Show to talk about a Photovoice Research Project she was about to undertake, asking young people to document their experience in pictures. In this episode, she shares the results from the group of eight individuals with FASD (ages 12 – 19 years old) who participated.
Miranda is anEducational Psychologist in Scotland responsible for neurodevelopmental assessment pathways with health services in areas of FASD and Intellectual Disabilities. She has worked in education systems for the last 20 years and has guest lectured on the Scottish Masters in Educational Psychology courses. Currently, she is working on a Ph.D. at the University of Edinburgh on the value and impact of an FASD diagnosis.
It’s back-to-school season, and with that comes IEPs, IPRCs, 504s, and education plans! If the terms or process are confusing and frustrating, we have you covered in this week’s podcast with Mark Courtepatte – one of the most popular Insider Experts in our CKS Coaching Program. But you don’t have to be in the program now to hear his expertise!
Mark is not your average FASD advocate! When he is not at his day job, he is very dedicated to his role as the Co-Chair of the Hamilton FASD Support Group. What started as a group of 5-6 individuals, Mark and his team have created significant programs, events, and advocacy in their home community and across Ontario. Through his FASD work, Mark has also taken an interest in the IPRC and IEP process, helping folks understand the process and their rights. Mark also has a unique perspective as he is a partner to someone with FASD.
I did not grow up as a disability advocate. I think like most of the...
Tigger Warning: Incarceration, Suicide, Trauma and Sexual Assault
This unique episode has some critical information about how systemic barriers and failures can result in adverse outcomes for individuals with FASD. We will leave the detail for the episode, but we want to give you a general idea about the content.
First up, I want to thank Shawn for being brave and vulnerable in sharing his story. Rhonda also has my deep respect for supporting and loving him through this process, while also recognizing the impact and harm on the victim.
Rhonda has worked in the child welfare system for 30 years. She was first introduced to FASD in her personal life when she provided respite for Debbie and Bill Michaud (both former podcast guests). Eventually, she raised 8 individuals (most with FASD) and supported a variety of their friends and family along the way, which is how she came to know Shawn.
Our talking about this and trying to find understanding...
The first 3 months with my first foster placement were some of the most stressful times I’ve ever experienced. We were surviving and food was my fix. It was my coping mechanism.
We talk about those first three months and how and why she went from athletic and in shape to putting her health on the back burner and hitting rock bottom. We also cover:
If you’ve attended any of my presentations, taken my CKS Coaching Course or followed me for a while you will know one of my sayings is “I’m not a doctor, a lawyer or a social worker,” but my guest today is a social worker and she just happens to be my wife and business partner – Tara Soucie -Noble.
Tara does much of the behind-the-scenes work with our daughter, and our business, but she had a long career working with individuals with FASD, was a foster parent with me, and has worked with a variety of populations who have intensive housing support needs.
On unhealthy coping strategies: I was using work with transitional street youth as respite. Changing my career and learning about the brain differences helped me change my perspective.
It has only taken me three years to convince her to share that knowledge with our audience, but I think it was worth the wait. In addition to getting an inside scoop...
Today’s show is a show of firsts. You will learn how Tristan and Scott Casson-Rennie first met, how they became the first same-sex couple to adopt through the agency they used in the process, their trials and tribulations as they navigated parenthood with first a sibling group and then a third, their first experience working together to create an organization called FASD Ireland, and what the first item Scott asked for after coming out of surgery.
After retiring, Tristan became the Founder and CEO of FASD Ireland. With Scott, they are dads
to three boys of diverse needs, including one with an FASD diagnosis. Scott is the Chief Operating Officer of FASD Ireland, Host of The Adoption and Fostering podcast and Co-founder and Director of No Borders Training.
When the boys were placed, they had multiple diagnosis depending on which practitioner they had seen. Every single one seemed to add another label. It was if they were walking...
You may have heard talk in the FASD world about a new documentary in the making, Embraced: Truth about Fetal Alcohol Spectrum Disorder. I wanted to find out the details so invited the three principals on the project to talk about it.
Joel Sheagren is the Director with Jodee Kulp and Justen Overlander co-producing. Joel has a 30-year background in advertising and is a parent to a young man on the Spectrum. Jodee is an author, advocate, both an individual with and parent of a loved one with FASD, co-founder of the Red Shoes Rock movement and returning guest. Justen is a former teacher who also works in the film industry.
It's time to tell my story. I’m passionate about it. It’s time for me to start talking about my parenting experience and what I’ve learned and the success I’ve had with my son and have him speak into that and let it grow from there. - Joel
In this episode, you will discover:
It’s important to recognize I am not a doctor, lawyer or social worker. I do have lived experience, education and have interviewed many individuals with FASD, researchers, professionals in the field and coached hundreds of families. I like to say, you are the expert on your child, I’m an advisor.
In this Ask Me Anything episode, you will find my best research and answers to the following:
Have you ever wanted to share your story and experience with the world? Let others in on your lessons learned and hope they find comfort knowing they aren’t alone in their journey? That’s exactly what my guest, Jillana Goble has done – for a second time, with her new book: A Love Stretched Life, Stories on Wrangling Hope, Embracing the Unexpected and Discovering the Meaning of Family.
Jillana Goble is a speaker, author, advocate and founder of Every Child Oregon. Together with her husband, Luke, she parents five children (including one with FASD) ranging in age from 10 – 18 years old. She has written two books (No Sugar-Coating and A Love Stretched Life).She’s passionate about getting people to link arms with the state’s overburdened child welfare system to uplift vulnerable children in foster care and those who serve them.
I am thrilled that they gave me the opportunity to shed a spotlight on FASD. I am thrilled for...