The Classroom Conundrum: Advocating for Your Child in an Uncomprehending System
Ever sat in a meeting with your child's teacher and felt like you're speaking two different languages? No, it's not just you. The struggle to get educators on the same page when it comes to FASD is real, and the stakes are high.
In our latest episode, "To Cool for School: The No-BS Guide to Getting Educators on Your Side," we dive into this complex issue head-on. We don't just air out the problems; we offer real, tangible solutions that can turn that uncomfortable parent-teacher dynamic into a collaborative partnership.
1. The Reality of a One-Size-Fits-All Approach
Do you ever feel like your child is just another cog in the educational machine? The problem often starts with a one-size-fits-all approach to education that disregards the unique challenges and abilities of children with FASD. Changing the system isn't going to happen overnight, but changing your child's experience within that...
The Mind-Boggling Moments: My Top 3 FASD Aha! Revelations
Ever felt that frustrating gap between what you know about FASD and what you actually understand when facing its real-world challenges? You're not alone.
We've all been there: armed with the facts, aware of the science, but still left bewildered when faced with the raw realities of dysregulation, overwhelm, and anger. On paper, it all seems to make sense. In action? It's a whole different ballgame.
Drawing from my own experiences and the winding path from knowledge to deep understanding, I'm here to share my top AHA moments. Moments that illuminated the complexities of FASD and bridged that daunting gap. Moments that I hope will guide you on your journey to not just knowing what FASD is, but truly grasping what it means in the day-to-day life of your loved ones.
1. It's all about the brain, not the face.
How many times have we heard or even thought, "But they look so normal!"? It's a trap...
Unlocking the Mystery of FASD: A Simple Guide to Understanding and Explaining It
Have you ever found yourself struggling to explain FASD to someone who just doesn't get it? You're not alone. Many caregivers and their loved ones face this challenge daily. But what if I told you there's a simpler way to not only understand FASD but also explain it to others?
FASD is not just a medical term; it's a lived experience that affects families in unique ways. In Episode 134 of the FASD Success Show, we take the FASD definition I recommend and use and break it down into digestible sound bites so you can help others understand.
You will come away from this episode with a straightforward way to articulate what FASD is, how it impacts daily life and a concise, effective way to explain FASD in the time it takes to ride an elevator.
This episode is a game-changer, trust me.
After you listen, let me know what your “elevator pitch” is. I’d love to hear it!
Show notes
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If not, no worries - I got you covered with the launch of my FASD Success Show YouTube channel.
So, let's discover the journey of FASD Day and how it's uniting people worldwide.
You're not alone and here's why!
Red Shoes are More than a Fashion Statement
Have you ever wondered about the story behind those vibrant red shoes you see on FASD Day? It's not just about making a bold fashion statement. It's about standing out, being proud, and advocating for understanding and acceptance.
The Origins of FASD Day
FASD, or Fetal Alcohol Spectrum Disorder, is a complex condition that varies from person to person. It's considered the most common known cause of developmental disabilities in the Western world. And yes, it deserves its own day of recognition. The first International FASD Awareness Day was celebrated in perfect harmony on the ninth day of the ninth month in...
The FASD Success Show is back!
After a hiatus, Jeff Noble returns with an episode filled with unexpected twists and raw emotions, illustrating the power of resilience, healing and community support in overcoming life's adversities. Why did he step away? What brought him back to the microphone? And what is the lifeline he is about to toss to caregivers that promises to reshape the FASD landscape?
Tune in, lean in, and discover what's been unfolding behind the scenes, including:
In this episode, I delve into the complicated and emotional process of moving forward after the loss of my sister. As we navigate the loss of my sister's passing, I reflect on the ups and downs of grieving and how it has changed me. Join me as I share my experiences and the eulogy I never got to say.
In this episode it is you helping me cope with grief and honor the memory of my sister Jennifer.
I also give an update on the future of the show. Despite this difficult time, I am still passionate about sharing my story and connecting with others. I talk about the new topics I plan to cover and the ways I will be evolving the show moving forward.
This is was really hard to do so I appreciate you taking the time to listen.
We'll be back soon...better than ever!
We are back! What a whirlwind the last couple of months has been! In this return episode, I let you know where we have been, what we have been doing, and what the future of the show is, but more importantly for right now for you I am giving a mini-coaching session on how to really survive the holiday!
How are you holding up? Many of the caregivers in our Facebook Group and Coaching Course are feeling the strain. You may be burnt out but so are our kids. Even my daughter, who is neurotypical. Add in the disability, seasonal depression, or trauma (for you or your kids) and we have an assault on our nervous systems. Tune in to hear the collective wisdom from my team and the families I work with on how to navigate this season. I dig deep and share:
I...
Still feeling that pressure that we are doing everything we can, but there is still issues. Yet, academically, he is doing well at school. There was a part of me that was so angry because of all the professionals we had seen. Why hadn’t anyone suggested it. Why didn’t I know?
We talk about how things escalated to the point where there was involvement with the juvenile justice system, placement in a therapeutic day school and...
Do you ever wonder how families with multiple kids on the Spectrum manage? In this week’s episode we meet Anne and Jeff Munson, parents to 19-year-old twins, a 16 and a 14-year-old. They are going to tell you what life was like living in a “hormone hurricane.” There was police involvement, constant dysregulation, and issues at school. In fact, it got so bad their son told them they needed to go to parenting school.
I felt like I was a horrible mom. I felt we were not good parents. I wondered why were they not listening to us? Why don’t the teachers understand? We always presented a unified front to the kids, but there were breaks in the armour. The water was coming over the dam. It was tough.
Once the twins turned 18, Anne decided something needed to change. We discuss what that was and how they made those changes, including:
Brad and Sara Evans went from a loud, outgoing family involved in their community, to questioning why they ever left the house. Everybody knew them and loved them. Until they adopted their young great-niece and nephew. They anticipated challenges, because of the children’s background, but because they didn’t know about fetal alcohol spectrum disorder, they were not prepared for the challenges they faced.
In the beginning, it was like walking on eggshells every day. They expected their niece and nephew to function like their 5 bio kids, including their 3 and 5-year-olds, and respond to the same parenting strategies, but they did nor could not.
(My oldest children) would tell you I screamed all the time. I went through a time when my voice was hoarse. I kept thinking they are going to stop if I yell. It didn’t help.
In this special episode you will find out:
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