Do you hear people talk about using a strength-based approach when supporting individuals with FASD? Do you know how to do that? Do you even know what that means? In this episode of The FASD Success Show, I talk with Dr. Katy Flannigan, (Research Associate at CanFASD) and Dorothy Reid (Co-Chair of the CanFASD Family Advisory Committee) about two recent projects: a narrative review of the literature on strengths of individuals with FASD and a survey seeking the experiences of caregivers.
The lack of strengths based FASD research has likely perpetuated the stress and stigma experienced by individuals with FASD and their families. There is a critical need to shift the direction of the field.
I don’t know about you, but even as a research nerd, I find some of these studies difficult to understand. We are going to break it down for you. You will find out:
Content Warning: While Olga and Serhii are positive in their resolve and for their future, this interview deals with the current war in Ukraine.
We realize we are living in very significant times. Today we’ve been invaded by our northern barbarian neighbours. Kyiv is being bombed. Soldiers are dying. They are invading from all sides. That’s the stage we are going through. Ukrainians are tough and we are going to resist. We are Ukraine. We are strong and we will protect ourselves.
Who has not been transfixed by what is happening in Ukraine? Olga Bolshova, an alumnus of my CKS Coaching Program has been very active in setting up FASD programs in Ukraine.
So much dedication, that last night when they knew they could wait no longer, they put their safety plan in place to leave their home. Serhii reported they had to wait though until Olga finished the FASD diagnostic webinar she had organized for doctors. How surreal is that?
With so many...
If you are a member of my private online Facebook Group, you know it’s not my group. The group belongs to my guest today, who has become famous for his “wee chuckles” – Alex Duthie.
People can come on, ask for info, advice, tell stories, or a good old vent. It’s like a 4,000 strong family. There’s no judgement. We just get on with it.
Alex and his wife Sylvia have 6 bio children between them and fostered 2 boys with FASD. We talk about how they arrived at the fostering journey as well as:
Many posts make me cry. It’s heartbreaking. If I can just help to make someone forget just for one minute, just by giving them a smile, that has made my day.
I also get the details...
Join me and my co-host, Barb Clark, as we talk with Abigail Erickson, Dr. Leah Wetherill, and Jeanine Schulze, part of DiG FASD, a fetal alcohol research study at the Indiana University School of Medicine about FASD and Genetics.
Interestingly, kids with FASD get referred to geneticists yet there isn’t a specific genetic test for FASD. But geneticists are trained in ‘syndromes’ and those are health issues that have multiple things going on. They take all those puzzles pieces and put them together to identify what is going on.
DiG FASD stands for “Dissecting the Genetic Contributions to Fetal Alcohol Spectrum Disorders.” FASD is a Spectrum. The research team says that by understanding how genes make FASD different, they hope to discover and improve treatments and interventions. If you might be confused about genetics, don’t worry, I got you covered. We break it down for you:
Few topics can divide people or make them so uncomfortable that they don’t talk about them. Sexuality is one of them. It is so stigmatized. It isn’t talked about enough. Ignoring the reality won’t make it go away, says PascalGagné, my guest on today’s show.
Given that inappropriate sexual behavior (ISB) is displayed by 45-52% of adults with FASD, and can present issues that split families up, this is a topic caregivers should pay as much attention to as other important life skills.
Pascal Gagné is the FASD Team Lead at Health Nexus (Ontario, Canada). He oversees the provincial FASD initiatives. Before this position, Pascal was the FASD Research Lead at ABLE2 (Ottawa). He also teaches classes at various universities and colleges.
A lot of people with FASD need things to be explained to them multiple times before they understand, and so they can process the...
When I was pregnant the formal advice was it’s probably safer not to drink but there’s no evidence there’s the harm if you just drink one or two small drinks a week.
We are diving deep to learn about how the study came about as well as:
While this was a preliminary study based on children...
Today’s guest likely needs no introduction, as he has been a fixture and looked up to as an expert, sharing his story, teaching, and advocating in the FASD world for 35 years – but it wasn’t always that way. Dan Dubovsky couldn’t even get 12 people to attend his first professional course on FASD. But that didn’t stop him. I’m also excited he agreed to be on the show as he is one of the FASD pioneers that I have looked up to and learned from. Today I am sure you will learn and be inspired by him (if you haven’t already).
Dan has worked for over 40 years in the field of behavioral health as a direct care worker in residential treatment and a therapist in residential and outpatient settings as well as an oncology social worker and Instructor in Psychiatry. He has written and taught courses on child and adolescent development, loss...
Peter W. Choate, MSW, RCSW, PhD, PhD is Professor, Social Work, Program Coordinator, Member and Supervisor, Clinical Registry, Alberta College of Social Workers. Peter’s teaching focuses on assessment issues in social work, including families, as well as child and adolescent mental health. He has served for 5 years as the Field Director for the First- and Second-Year Practicum Program and is now the Program Coordinator. Peter is an expert witness in social work with sub-specialties in the areas of social work case management,...
A caregiver in our private Facebook Group asked: Am I the only one seriously considering cancelling Christmas?
We know this time of year can be challenging. So, if you feel like cancelling Christmas, or want to reduce meltdowns or overload, check out these top 8 ideas or hints for the holidays suggested by other caregivers:
We know there are times when you will want to decorate, engage in activities or visit family or friends. Some additional ideas that may help: